Welcome to Just Joders
Mom of three girls, including twins. Wife to a lucky man. Galactosemia Advocate. Coffee until wine is acceptable. I love Jesus but I cuss a little. I have a lot to say. So I write things. You can read them here!
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Mental Health Awareness Month: The Solari Sisters Go To Therapy
CONTINUE READING: Mental Health Awareness Month: The Solari Sisters Go To TherapyThis is a doozie of a real talk. And before I start, I want you to know I did ask Francesca if I could share her personal business on my blog and she gave me permission. So here we go… A couple years ago, Francesca started telling us she was feeling sad. We had picked…
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Broken Brain Update: Stop me if you’ve heard this before…
CONTINUE READING: Broken Brain Update: Stop me if you’ve heard this before…In September of last year my regular migraines and confusional migraines increased and by the end of the year they were both out of control. After having one while at work in Jackson, I sent a desperate message to my doctor about a referral to Cleveland Clinic. Not because they have a confusional migraine specialist,…
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“What About Us?” – Galactosemia Community
CONTINUE READING: “What About Us?” – Galactosemia CommunityA few days ago, I asked for anyone who might know a local doctor who would be willing to take over the management of the investigational drug Francesca is on. We learned that the company that bought the medicine was ending the Expanded Access Program (which has allowed access to the medicine after the clinical…
